BE FAIR 2 RARE is a public outreach campaign founded by the iBellieve Foundation and launched with the Canadian Organization for Rare Disorders (CORD). It is aimed at raising awareness, funds, and advocacy for the rare disease community in Canada. Launched on International Rare Disease Day 2011 (February 28, 2011), the campaign highlights the fact that despite 1 in 12 Canadians suffer from one of approximately 7,000 different rare diseases; Canada is the only country in the developed world WITHOUT a Federal Healthcare policy for the rare disease community.
It is vital we raise awareness of this important issue in Canada with both policymakers and the general population. We further ask that our government continue to explore ways to support this not so rare segment of the Canadian population as it seeks equality in the eyes of our healthcare system.
MAKE A DONATION AND SEE HOW YOU CAN MAKE A DIFFERENCE!
Sign the petition to tell the federal government it’s time for an Orphan Drug Policy in Canada!
For information or media requests, please contact: firstname.lastname@example.org